“Unveiling Inner Beauty: Lazi’s Courageous Odyssey with Treacher Collins Syndrome”

Her first surgery was the G-tube

And then her second surgery was a jaw distraction.

Do you know what that is? –

What is it? –

So it’s basically where they cut your jaw in half right here, and then they put this device and it kind of looks like a railroad track.

It’s how I explain it.

And they have like these little bars right here that come out and you twist the bars and it pushes your jaw down and out and it creates a gap in between your jaw, so new bone could grow, and it moves her jaw forward –

Why’d it come off? –

Do you help your sister a lot?

Yes – What kind of things do you help her with? –

Mostly like if her trache clears or she needs help doing something, or like she wants me to make food with her, or like help clean up her room.

What is Treacher Collins? –

It’s, I don’t know.

– I know, I know it.

What is it?

(Lazi speaking indistinctly).

– Huh, I don’t know. –

She can understand the most complicated words that she’s trying to say, and it’s amazing.

– What is the best thing about being sisters.

– Because, like we hug because she’s my sister And play with each other in the room

And we can eat and and we can play with each other on the fort – Did you understand? –

No, could you tell me what she said? –

What’d you say, Lazi? –

I said that we love each other and play with each other in the room and we eat together and play on the playground. –

And she says: we love each other and we play together in the room, we eat with each other and we like- – Play on the playground. – Play on the playground.

Related Posts

“Forever Radiant: A Journey of Unchanging Beauty from Childhood to Adulthood”

In a world where change is constant, there exists a marvel that transcends time – the unchanging beauty of a woman’s face. From the innocence of childhood…

Surpassing Expectations: Tiny Miracle Baby Thrives After Starting Life at Just 254 Grams.

There ɑ re children who come into this life ɑ s true mir ɑ cles ɑ nd one of these h ɑ s been ɑ b ɑ…

Beyond the Shadows of War: The Heartbreaking Impact of Agent Orange on Vietnam’s Children.

A millioп Vietпamese people are still affected by America’s υse of chemical weapoпs iп the 1960s which has left babies sυfferiпg paiпfυl deformities aпd meпtal illпess. Hospitals…

From Skepticism to Silence: The Unwavering Love Story That Defied Doubters.

Foreign has given up everything he has worked so hard for all because of this sick woman. Yes, you heard me right, this man has nothing registered…

Little Superhero: How a Baby Girl’s Birthmark Became Her Badge of Courage.

Aпdrew Jacksoп, 34, aпd his wife Lacey, 35, were “filled with paпic” oп Jaпυary 9, 2018, wheп their daυghter Natalie emerged from the fetυs resembliпg the sυperhero…

From Clover Leaf to Miracle: The Astonishing Journey of a Baby Defying Medical Odds.

Kaydence Theriault, a 3-year-old American girl who lives alone with her two triplets, was born with Crouzon Syndrome. Kaydence’s severely deformed cranium is the outcome of this…

Để lại một bình luận

Email của bạn sẽ không được hiển thị công khai. Các trường bắt buộc được đánh dấu *