Her first surgery was the G-tube
And then her second surgery was a jaw distraction.
Do you know what that is? –
What is it? –
So it’s basically where they cut your jaw in half right here, and then they put this device and it kind of looks like a railroad track.
It’s how I explain it.
And they have like these little bars right here that come out and you twist the bars and it pushes your jaw down and out and it creates a gap in between your jaw, so new bone could grow, and it moves her jaw forward –
Why’d it come off? –
Do you help your sister a lot?
Yes – What kind of things do you help her with? –
Mostly like if her trache clears or she needs help doing something, or like she wants me to make food with her, or like help clean up her room.
What is Treacher Collins? –
It’s, I don’t know.
– I know, I know it.
What is it?
(Lazi speaking indistinctly).
– Huh, I don’t know. –
She can understand the most complicated words that she’s trying to say, and it’s amazing.
– What is the best thing about being sisters.
– Because, like we hug because she’s my sister And play with each other in the room
And we can eat and and we can play with each other on the fort – Did you understand? –
No, could you tell me what she said? –
What’d you say, Lazi? –
I said that we love each other and play with each other in the room and we eat together and play on the playground. –
And she says: we love each other and we play together in the room, we eat with each other and we like- – Play on the playground. – Play on the playground.