Yes, it’s a bit crispy in everyday life.With this, I start every good day with my followers.The desire for water is sweaty for all of them when I look at myself in the mirror.First of all, I find myself beautiful.This problem, despite stirring up the line of neediness, right, never accepted me.I always fully accepted myself.

My name is Karine Souza, I am 32 years old.This problem that I have is xeroderma pigmentosum.Right, a Rare disease, and it is caused by the sun.I can’t deal with it, What the sun didn’t drain any kind of light that transmits rays, other Violets, right?

So I spend most of the time indoors, even when there is a need, I adapted, right, As I grew up over the years, I went, not the doctors, this guide, to say that I could not expel myself from the sun. Just a rash, right, Some spots on the face, here on the shoulder, went here. Spread, right, all over the body, because of the Sun. Three years ago I was diagnosed, right, with this problem.

Yeah, I’ve had over 200 surgeries, all to remove skin lesions, right, all diagnosed with cancer. These spots are one of the types of cancer, right, what’s it called? No, there, so when I expose myself to the sun, at the time, nothing happens, I don’t feel anything. However, in the future, these lesions grow, lesions that all have to be removed, have to be altered because they are cancer.

When I was younger, right, in childhood too, especially in school, right, I suffered so much prejudice, so much bullying. I always, when I pass even today, when I do this on the street, I always see people pulling, talking quietly, looking with a different look and I can’t stand it. I didn’t think I didn’t want to go alone, but it was when I surprised myself with that, right, it was when he arrived and showed me that I was, could say yes, a story of some, true ones.

My name is Edmilson, I’m 27 years old, I’m Karine’s husband, I work as a grill chef. We have our own Hamburger place, we met through social media. So I found her life story very interesting and it caught my attention a lot. Okay, so I sent a friend request. I started liking all her photos and stuff.

Then she reciprocated. so then we started exchanging messages. He said: we spent about five months just exchanging messages, didn’t live here, lived in Rio de Janeiro. She went, traveled, spent about three, four months there, then, at the end of that period she spent there, she had to come back to her children.

Her life was here and mine there then, after a while, and I came to live here once and for all. It’s been up to today. Ah, since the moment I came to live here with her, never, she, never. I think he came to a consultation without me, like the same. When I worked in some places for others, I was late, I’m always by her side. Since the beginning of our relationship, we always spoke, right, and inform a family together is glaring for the moment, right?

Regarding having a child, it has always been a dream of mine and when I met the face we started to get involved, I saw that she was the right person to give me this daughter. We hunted for several years. Trying, trying, and it didn’t work out, right, preventing, it didn’t get pregnant, but then we did the result. I was feeling some symptoms, right, and we did the sarnacia test and the positive came, so it’s the same, we were really surprised.

Today I’m six months pregnant with a princess – her name is Zaia – and we’re saying: Very happy moment, my health issue, my condition and, if it doesn’t affect anything, my pregnancy. Thank God, one thing has nothing to do with the other. The only problem is that it hinders a bit in relation to treatments. The surgeries I have to do constantly are to remove skin lesions that are caused precisely because of sun exposure.

My pregnancy only affects surgeries. However, I won’t be able to take any kind of anesthetics. And they also say there’s a big surgery that I’ve had two nodules in my lung since 2019 to do. Yes, it’s a bit crispy that I left this dream aside. She has our son, but then it came as a surprise. But, thank God, so far everything is going well, so much so that I only shared it.

I was four months already when I told on my social media. Well, I, as I’m getting in this surgery, right? I never wanted to tell right away, because there are many good people there at this time, people who attack. Right, there are still attacks today, from people, right, because he is a young, handsome guy, right, who caught attention and people didn’t believe, right, that he did it to me. Because I really didn’t because I really liked it.

So we suffered various attacks, malicious comments from people saying that he had nothing, that he was with me for interest, that I was rich, that he just wanted media. He, neither he nor he liked condensed milk, which we always read. It was me who called a lot, because people think, or stop thinking, the important thing. It has always been me and her that we have people who think: it doesn’t matter, the important thing is that we are happy as people talk, and he never liked it very much like pecking.

But nowadays social media is very toxic, right? Yeah, there are many bad people who think they have the right to give opinions, to criticize, not to believe, but they don’t have to believe in anything, right. Who has to believe is us who are saying and people are more empathy and love for others. It is now, with pregnancy, we are very happy, both me and her, because everyone we always wanted from the beginning, since always. I’m fine in terms of health, I’m stable, right, Thank God.

Yeah, with some concerns, more normal and has many comments. It’s people who are inspired not only by my story but also by our relationship, and there are many. I can’t mention it. You know we built together something that I think everyone should have, which is a real family, which has a lot of unity between us.

They are actually a real family.